Background: There is limited information regarding quality of life in inherited ichthyosis.
Objectives: To identify factors influencing quality of life in inherited ichthyosis.
Methods: The study used focus groups and involved adult patients suffering from inherited ichthyosis from three French hospital centers. Group discussions were conducted by two facilitators and were continued until data saturation was reached. The verbatim transcripts were analyzed independently by two investigators. Categories considered as key factors in the modulation of quality of life were negotiated until agreement was obtained.
Results: Data saturation was reached after the 5th group. ...
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